Waiting for a Heart
Tuesday, March 25, 2014
To Present Date
Well, I figured I would give the world an update on life since I have not in so long.
Our wait for a heart never came through. The Hospital removed him from the list back in 2010, somewhere around that timeframe. We were told that we could locate another facility to take him on as a patient, however never offered a hand in helping me find a facility. I called Hospital after Hospital and transplant departments.
FINALLY!! We got the call for UAB to see him as a patient, to see if they could help. We then spent the next several months going back and forth to Birmingham, that is just made sence to move there. Time went on and they said they would not place him on the Transplant list, however would consider a LVAD. Awesome! What the heck is a LVAD? What do we do with this thing, and what do we have to do to get one. Well, a LVAD is a Left Ventricilar Assisted Device. It basically contols the whole left side of the heart.
Rod's health was becoming worse each day as we moved on, and UAB said there is really nothing else they can do, since his right heart was as bad as the left. So, what to do now?
We did get help from the Doctors at UAB, and they connected us to a hospital in NYC, which his insurance would not cover, and then got a call that Vanderbuilt would see him, well, they had already denied us once, when I sent the records to them, so I really had no faith in them either.
On March 20, our 9th Anniversary, I brought my husband home from the hospital, and then I had to rush off to work. I got him his favorite nuts that day, Macadamia Nuts. Then off to work. I was working part time at Olive Garden. I had a table run late that night, so I did not get home until 11:15 that night. I was going to run to Walmart on my way home, but I called home instead. The girls told me daddy was breathing funny. They had never heard this type of breathing before, so I rushed home to take care of him.
When I got home, he had a red towel around his neck. I picked it up jokingly, and said what is this? He said he was sick, and passed out. His lips began to turn blue, so Sariah called 911. The Paramedics tried to get a heart beat and there was none. They began doing CPR on him, because the machine told them not to defibulate him. They took him to the ambulance, all just before midnight, we got to the ER before him, they took us into the room. The one where they tell you your loved one has passed away. I knew why I was in that room, I do not know if Sariah or Eveyaunce really knew, we never have really spoken about that night in such detail. We all grieve differently.
Even though I know when he passed away, the certificate they gave me has March 21st on it. He was gone before midnight, on our anniversary, so forever will the First day of Spring have a new meaning for me and our family.
Life has not been easy since then, life had to keep moving on. I go lost for a while, maybe I still am a little lost, who knows. I still keep putting one foot in front of the other, and will do so, until the day I die.
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